February 15, 2012

Josie's special heart...

Josie's cardiology appointment on Monday was a very thorough exam. It was a good appointment.

Although we see Dr. Lacina yearly, she hadn't had a full work-up in two years. Josie has Tetralogy of Fallot and you can click here to find out more information on this condition. Josie was incredibly tolerant of her ultrasound, EKG and anything else that was asked of her. It didn't hurt that she was able to watch Kung Fu Panda 2 during her 40 minute ultrasound.

After reviewing all the exams with her cardiologist, we were reminded that despite all her initial surgery, she still has an enlarged heart and that she continues to have quite a bit of back flow through the pulmonary valve back into the right ventricle because it doesn't close properly.


We talked more realistically about "when" our doctor thinks she'll need the pulmonary valve replaced. Our hope (fingers crossed) is that she can get the majority of her growing years done before the surgery. Optimally, we'd like to get her to age 15. We also talked realistically about sport restrictions and endurance restrictions now that she's school age. Looks like football, basketball, hockey, wrestling, competitive swimming, singles tennis, and gymnastics aren't in her future, but I'm guessing she'd make a fine softball player!

In March, we'll be celebrating our 4yr adoption anniversary.
In April, we'll be celebrating our 4 yr heart surgery anniversary.

Such a special girl
with a very special heart.

Our favorite superhero!
XOXO

31 comments:

KJ@letsgoflyakite said...

She is so courageous, as our all of you. Thank you so much for sharing this update. I also hope that you will be able to postpone the valve surgery until her mid teens. Blessings to you.

vivian said...

Im glad to hear that things are looking good for Josie. My girlfriends son had something similar and had open heart surgery last year at age 16. It amazed me how quickly he bounced back and how little school he missed.
Josie is blessed little girl.
have a great day
xoxo
vivian

Jodi said...

Glad it was a good thorough exam! Praying she will be able to hold off until 15 yrs old! What a beautiful blessing Josie is!!!

Courtney said...

Thanks for the update. Glad to hear that so far things are okay. Love the sweet little baby picture of her.

Barbara said...

What a beautiful girl (and family)! I'm glad you had a good appointment and hope you have nothing but continued good news...

Michelle @ Dream Home DIY said...

She's sucha trooper :) Im so glad to hear that the appointment went well. And I bet she'd make a fine softball player indeed.

Happy (early) anniversaries to your family!!

La Dolce Vita: The Sweet Life said...

You are all so courageous! Blessings to you.

Kim said...

Sooooo cute... and such a brave little girl..
Love you girly.. miss ya...

Jboo said...

What a sweet and special girl with her very special heart! Love that big smile of hers! Will keep her in my prayers.

Had valve repair surgery almost 6 years ago. It was going to be replacement, but the amazing surgeon was able to repair it instead.

Congrats on 4 years with your amazing super-girl!

Debbie@Debbie-Dabble and A Debbie-Dabble Christmas said...

Kim,
She truly is a super hero!! As is your entire family!!
Josie and your family will continue to be in my prayers....

Hugs,
Deb

Joanna B said...

Yay for good heart news! Glad to hear things are going well. We have our appointment in a few months...

Heather said...

What a brave little girl! I am so glad that the appointment went well.

Cheryl G. said...

She is such a sweet little super hero!
What a brave one she is and what amazing hearts you all have!
Prayers and all good thoughts sent your way!

Donna said...

I'm so glad the hear that the appt. went well. Kim. Josie has a heart of gold, and truly is a gift from God! Not to mention being a brave little girl!!!

Diann said...

So glad to hear everything went well with Josie's appointment!

Rachael said...

Wow- just stumbled across this blog and was moved by this post. Huge hugs to your family and your brave little girl. Rx

http://sandersonsmithstory.blogspot.com/

Beach Mama said...

Happy Anniversaries to y'all! You have a very precious, spevial girl there. She is truly a super-hero!

Karin said...

So happy to hear you had a good visit! We are hoping for the same thing for SaraGrace (ie: the valve replacement). It would be so great to be able to have that done in the cath lab instead of an open heart surgery. Hugs!!

My Vintage Mending said...

Hello girls I was waiting for Michael to get home to explain more of this but I wanted you all to know that i was thinking of you this week. Josie you are a sweet gift to us all. Thank you for sharing. Smiles...Renee

Lee said...

So no bad news...just something in the future.
Josie is a wonder-Love those pink panda socks!
Hugs to all of you for what must have been a stressfull day.

Katia said...

Auguro alla piccola Josie e a voi tutti che tutto vada per il meglio e che abbiate sempre buone notizie e un futuro gioioso!

Pink Roses and Teacups said...

Hi Kim,

So glad that Josie had a good exam! Hope you will be able to postpone the surgery until her teens. she is a darling, special little girl!

Hugs,
Debbie

Jodee said...

What a sweet post! Josie is definitely one tough cookie! I am so glad the appt. went well!

Hope you had a Happy Valentine's Day! Our fondue was a big hit!

Janet said...

I'm so glad Josie's appointment went well. She is a very special little girl and superhero!
Blessings,
Janet

GardenofDaisies said...

I am so glad you had a good appointment. It's good to be realistic about the situation and I'm sure she will find all sorts of wonderful activities which will not put stress on her heart. Bowling team? Marching band?
Hugs to you all.

La Vie Quotidienne said...

What a brave girl she is...yes, you are right...she is definately a super hero.

Corey Moortgat said...

Such a special little girl! And what special, STRONG parents you must be to get through it all! I can't imagine having to watch my little babies go through these sorts of things!

Cindy said...

Yes, she has a wonderfully beautiful heart with parents and a sis with beautiful hearts, too. I will continue to pray that her surgery will be in the far away future.

Emma took such a lovely pic, and I especially love her lovely tribute to her Nana.

Thank you for your kind words. I am trying very hard to get through the next few days...Aunt Sarah would fuss big time if we let sorrow and grief take over. Her funeral is going to be a beautiful one.

Thanks for being such a precious blog friend,
Cindy

Pam said...

So glad she had a good exam. I had forgotten that she had the heart surgery so soon after she came to you. She looks so cute in that post op photo, like she doesn't have a care in the world. And who does when they are that age.

Life in Rehab said...

Oh, God, I want to hug that brave little angel!

ImagiMeri said...

What an exceptionally, amazing mother you are! Your daughter is even more so, and with the love of parents like you, her future is brighter than a star. Josie is so incredibly beautiful and that smile is to die for.......she must take after you. I will always keep you and your precious ones in my prayers.

Big Hugs,
Meri