February 28, 2011

Josie's Visit to the new Children's Hospital

Josie's cardiologist has moved into the new Helen Devos Children's Hospital and I have to say that the building is absolutely beautiful. Even the walkway from the parking lot to the hospital is impressive.

Prior to becoming a school social worker, my husband worked at the hospital as a medical social worker and we were both impressed Monday afternoon walking around the new building. It's full of lots of interactive artwork and feels almost like a children's museum.


I'm happy to report that there are any major changes since her open-heart surgery in April 2008. She's now 33 pounds and 42 inches tall. She's gained 3 pounds and grown nearly 3 inches since last year's appointment. Dr. Lacina is pleased that her echo appears stable and that her energy-level remains high (that's an understatement...she never stops MOVING).

She continues to have quite a bit of back flow through the valve back into the right ventricle and eventually she will need to have this valve replaced. Josie has Tetralogy of Fallot and you can click here to find out more information on this condition. Her valve replacement isn't anything that needs to be done right away. Her cardiologist keeps hinting that she probably wont' need this surgery until she's a teenager. I couldn't be happier with Monday's appointment.

Just look at this little face nearly three years ago.



Yes. I'd do another special needs heart adoption in second.
We're not adopting again.
But it's an amazing life-changing journey for the better.

XOXO

16 comments:

Heather said...

What an amazing post! I am so happy to hear that cutie Josie is doing so well!

my3 kids said...

I am so happy to hear that Josie's apt went so well. She is such a sweet little girl and she sure has grown...such a cutie!

Janice

Mike and Barb said...

That's great news! And yes, that hospital looks amazing! And Josie's hair - I can't believe how long it's getting!
And, last but not least - never say never..... just sayin'
Love, Barb

Karin said...

Wow...so great that the new hospital is open! It looks amazing! Such great news for sweet Josie, too. :) Let's hope the technology improves to the point that Josie and SaraGrace can have their valves replaced via heart cath instead of open heart. Wouldn't that be awesome?! :)

Number 6 and no more counting! said...

so pleased that everything is OK with your girl.

lea
xo

Lee said...

Good news! I am sure you all feel some relief from the news. Josie looks so happy and healthy.
Have a terrific week!

Courtney said...

Yay for Josie and your whole family. She looks like she is a very brave little girl.

KJ@letsgoflyakite said...

What a beautiful and moving post. I am so happy that sweet Josie is doing so well. Blessings to you.

My Vintage Mending said...

Yeah Josie! What a gorgeous smile...these are the days that you love! Smiles...Renee

La Vie Quotidienne said...

How wonderful that Josie is doing so well, it has been quite a journey for all of you.(-:

Life in Rehab said...

I see little round Josie belly!

Having a special needs child is such an amazing privilege and experience. My life would have been so different without the lessons I've learned from my sons. Their strength and perseverance has been a great example that's kept me going.

Michelle @ Dream Home DIY said...

Oh I am SO SO SO happy that the appointment went well!! What a cute little trooper she is :0)

Sarah said...

great great news! She really is such a blessing to your family

Anita said...

My dear friend...I pulled up your post thinking how amazing that both our girls had their cardio appts the same day. Ours, however, was not what we expected and not the norm of the last 5 years. But I trust in the Father who gave us our precious gift of this sweet daughter! And to Him we cling for everything including her health. I'll have to email you more details as I'm not planning on posting on it right now. HUGs!

Cindy said...

Yea, Josie! I was praying for a great appointment...So glad everything is A-OKAY!
Much love,
Cindy

Truly Blessed said...

What GREAT news!!!! I love to hear great news from the cardiologist!

Do you use Grifka's practice? That's Ella's cardiologist and I didn't if they were moving into HDCH or not. It looks cool though!

LET'S GET TOGETHER SOON!!!